So. las year we had Liam's speech initially evaluated and the results weren't surprising but were...very serious as we expected.
This last evaluation went fine. Though she started using a typical preschool test which is ridiculously inappropriate for Liam's age. Then moved onto the same test that was used in the last exam.
Except in her formal report? She didn't even MENTION the other test she did. So unhelpful not only to ME but also to whomever will be taking over for his speech. *sigh* Although I was able to pick a bit off his healthcare website information.
This? Makes no sense because she based it off a test that didn't have anything to do with the things he really did AND was inappropriate for him to be taking. So a year ago? He got an approproximate 6-9m for receptive language skills. This time? A 13m. Last year? He got a 6-9m for expressive and this time? The same thing.
HUH???!
Last year my son had ZERO words! NONE! Did not talk at all.
Now? He has 75+ words used in rotation. Has a few direct 2 and 3 word sentences (and that is REALLY limited but still).
The obnoxious things? The items which she said he did not do. Many of which were not accurate.
She wrote:
Liam does not demonstrate teh following below-age expected receptive language skills
*Names things such as animals, toys, or things to wear (THE FUCK?! Hello! My kid is all nouns. Animals are one of his favorite things. As are shoes. shocks. rocket. ball. book. Um...HUH? He does NOT do this, eh???)
*Understands when other talk about a toy in another room (true)
*Points when someone names major body parts such as hands/legs/feet/nose (okay, seriously? This has to be the most bullshit question in the world and it's on ALL these types of tests. You guys? I've NEVER TAUGHT HIM THIS. We never discuss nose and feet and such!!! That is a monkey trick not a kid activity and while I realize most kids at this age DO know this stuff? My kid is autistic and I'd rather teach him things like, I dunno, foods, toys, activities, etc)
* Carries out two step directions (duh. he doesn't do most one step directins)
*Understands new words each week (that's not entirely true. every week we seem to ask him to point out new things in books an dhe does. and every week he SAYS new words and if we say them he understands them.)
*listens or seems interested when someone talks, even for a long time (okay, no not really.)
*Understand when someone asks 'where' questions (not at all. he DOES have receptive issues bigtime but still.)
Then she totally got the expressive language all kinds of mixed up. No wonder he didn't score well at all. Like he puts down he uses two word sentences "more xxx" and "ready xxx" No he doesn't. It's more xxx or want xxx. ready? ready is a word he uses but not a word he combines outside of ready set go.
And her does not demonstrate?
* Showing signs of frustration when he can't make others understand what he is saying to them (THE HELL?! He's a nearly 3 year old autistic kid. Who quite OBVIOUSLY gets PISSED if you don't understand what he's saying/pointing/gesturing.How does he NOT show signs of frustration? Did you not see the tantrums when we didn't respond to him trying to get attention to get a certain toy? *sigh*)
* Says 2 new words per week (then comments that we reported this happening recently but infrequently. honestly? I can't even keep up with his list of words he says anymore. there are SO MANY all the fucking time. i don't even want to try because I know i'll leave some off. he has new words CONSTANTLY. they aren't all particularly helpful in every day life but they exist.)
*Label or have names for his favorite toys, foods, pets, or other objects (THE FUCK? I told her he DOES have names for everything but people. His bottle? ALL his foods. His rocket. His book. His 'pablo'. He could give a shit about the pets so they are nameless but the HELLLLLLLLL? He does not display this? okay then.)
* Often uses real words and motions/gestures when talking with someone (okay, he doesn't carry on a conversation but he most definitely uses real words when he does choose to talk to idiotic adult ass wipes)
GAH! I'm so frustrated. SERIOUSLY? I shouldn't be. Because this doesn't matter. But I really feel they got an inaccurate evaluation. And while I'll be MORE than thrilled for the school district to fuck him up with their eval so he gets more services? This is our private insurance and I need an accurate picture there so we aren't wasting time going through shit he doesn't need.
Fuck I'm really seriously annoyed. I feel like asking for a re-evaluation by someone who is not still doing her fucking internship or whateverthefuck. By someone who will utilize the correct test and do the evaluation appropriately and not be totally distracted while doing so (she even admitted she had to reask us questions often as she was paying attention to Lily or Liam or forgot where we were going with something and admitted ADD. Which, honestly, I bet is pretty helpful in a job with kids but then take the extra time to do it ALL instead of rushing us out. You have a 2 hour window. You barely took an hour. If you couldn't do it all the way don't do it at all!)
I'm frustrated. I was really hoping for an accurate view of his current progress and instead I'm told he's made no progress, essentially, though his receptive language has gone up minimally. And evaluation which is entirely inaccurate.
I KNOW my child is still severely delayed but fuck it I wanted to see the REAL situation.
I wonder if I can find that test that they were supposed to do online and do it my own damn self to put my own mind at ease to get a better view. I dont' know why I'm all in a tizzy over it except I had to pay for this stupid fucking test and I will have to pay for wasted fucking time and sessions as the therapists figure out what his situation REALLY is.
Fuck it. I may not even put him into speech until we switch insurance. But fuckhell I don't WANT to change insurance. *sigh* fuckity fucker fucks.
I'm grumpy. *sigh* Oh well. It's almost 5. Yippy skippy.
And it's SO not the weekend yet.
To make up for my grumpiness I give you severe amusement. The boy child in the super dorky sunglasses I got him to play with which he uses often now in stim city. Hey! Maybe I can get him to use them practically some day!
~M
Tuesday, August 26, 2008
So the official speech results are in. again.
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5 love notes:
How horribly frustrating! To get that one on one attention from a professional, asking a lot of your son while he puts up with it and anticipating formulated results so everyone can better adapt their care for him... and to have her be so careless and UNobservant. These results label your son, and so unfairly! I'm really sorry. Maybe a re-do would be best. Your frustration is absolutely justified.
Oh hon, I'm sorry... that does sound wildly inaccurate.
On the plus size, it sounds as if Liam's funding won't be threatened by this evaluation.
This is off the subject, but what are you going to call your blog when Liam turns three?
May I suggest: "2under3whyme?.blogspot.com
he he just kidding-love Brenda
Man I hear ya. Don't you think they should give the parents a questionaire or something to fill out to help complete the evaluation-- And maybe believe the parents answers!
My son was evaluated recently too. Without saying a single word, and never pointing correctly to a single picture, and not playing with any toys (except to keep putting them in the tub, over and over) he managed to pass his ST eval. ??!! and his case is now closed.
My inlaws and everyone else keep telling me I need to "make him talk", but he won't even immitate our words, so how can I do that exactly?
anyway-- I am venting! sorry. I really just wanted to say that Liam looks adorable in his Wayfarers. He looks like a very fun monkey to have around. Lily of course is Miss Fabulous as well.
I'm sorry M! Sounds a lot like Duck's eval a few months ago. You and Josh KNOW what Liam's capable of. He's making great progress and surprising everyone more and more each day.
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